The Perils of the Quick Fix Promise for Eating Disorder Patients

The wish for a quick fix for an eating disorder is the overarching dream for many people seeking help. The universally unfulfilled promise of recovery in treatment programs eager to sweep up more insurance money or the magical cure of GLP-1’s makes the slow and difficult challenge of real recovery much less appealing. Why engage in the challenges when a supposed miracle cure is available?

The reality for eating disorder treatment is that people are going to make their own decisions and often opt for the fast result and hope for the best.

Sadly, any eating disorder clinician knows that there is no quick fix. When there is a treatment program that actually does more than initial stabilization, providers will do everything possible to help their patients get that support. When medication fixes the eating disorder symptoms, enhances recovery or allows for relief of medical symptoms at the root of an eating disorder, patients will be taking those medications.

At the moment, neither of those exists.

These decisions about treatment largely rest on the patient now. Professional advice is still helpful, but the capitalist practices changing health care has come to eating disorders as well. Patients drive their treatment more than ever before and can consume whichever path they prefer.

Treatment programs urge patients who contact them to attend a program with less and less attention paid to what is right for each individual patient. GLP-1’s are available to anyone indiscriminately so people with active eating disorders are forging a new direction in their illness by suppressing appetite and losing weight leading to unknown consequences.

There is no reason to lament the direction of care for people with eating disorders. The path of health care in our society is set, and providers need to adapt to new circumstances.

Any treatment plan needs to focus on stability in a meal plan, adequate nutrition, managing eating disorder symptoms and improving health. The emotional trials of recovery are central no matter these other forces. Recovery may progress despite these new trends rather than in conjunction with them. But that is where our culture is heading. These forces aren’t new.

The people most at risk are those seeking help who are desperate and willing to take any risk necessary. Financial incentive of the eating disorder and weight loss industries overrides any one person’s well-being so patents will need guidance, compassion and kindness to continue on a path to getting well.

The future is unknown, and the outcomes very much unclear. There has not been this much uncertainty and concern about how eating disorder recovery will look in the future. What’s clear is that eating disorders will not diminish with these current trends, and the need for support in recovery is as imperative as ever.

The Risks of Easy Access to GLP-1’s for People with Eating Disorders

As eating disorder clinicians grapple with the potential benefits and risks of the GLP-1’s for our patients, it’s clear that only time will tell how to use them. The sudden availability of the drugs to all patients without medical supervision changes the circumstances meaningfully.

The medications as of now have two uses for people with eating disorders. The first is to help with inflammation which is common for some people with these illnesses. As I have written in recent posts, mast cell activation syndrome (MCAS) appears to have a higher incidence for people with eating disorders. The inflammation caused by mast cells which elicit a strong and inappropriate response of swelling, pain and many other symptoms unnecessarily can be tamed for some people with GLP-1’s.

Second, this class of medications affects hormones related to the gastrointestinal system. For people whose eating symptoms seem connected to dysfunction in these hormones, the drugs can improve hunger/fullness cues and metabolism. However, these benefits don’t cure an eating disorder, and still need just as much active work in recovery. As of now, there is no way to predict who will or will not respond without trying the medication.

Other than these two uses, there is no clear reason to try this intervention to help with eating disorders, and the risks are high.

People with eating disorder frequently have a strong urge to lose weight at all costs. Since the GLP-1’s are marketed largely for weight loss, the online shops sell it only for that purpose and usually recommend an aggressive dosing schedule just to lose weight. At the same time, these programs do not screen for eating disorders and don’t meaningfully assess if patients tell the truth about their intentions.

The result is people with eating disorders who aren’t satisfied with moderate effects of the drugs and then take high doses, eat much less food and lose dangerous amounts of weight only to relapse once the can no longer tolerate the drug.

The medications also don’t curb the eating disorder thoughts, propelled by shame, to restrict, binge or purge. Decreasing food noise is not the same as decreasing eating disorder thoughts. When these thoughts don’t subside, people tend to increase the dose desperately hoping for relief from something the medications don’t affect. Again, the higher doses cause problems with no promise of curing eating disorders symptoms.

Last, the medications, even at lower doses, can decrease hunger-driven binging for some people while causing weight loss. In this situation, people feel somewhat better but also worry about weight gain and choose to restrict more out of fear of weight gain. The restriction leads back to more binging. In this way, the medication encourages eating disorders behavior as a way to survive.

Overall, medicating eating disorders patients with GLP-1’s without any supervision or guidance is very risky. It’s very likely people will take much too high doses, find themselves with worsening behaviors and incredibly demoralized by the idea that this magic cure didn’t work. I am sure these medications will and already do play a role in eating disorder treatment, but they are just a tool. They aren’t the cure everyone is looking for.

The Free Market of GLP-1’s

One recent change to the pharmaceutical market is “direct to consumer” prescriptions. This moniker means that people can buy their own medication without a prescription or real guidance from a prescriber. The pharmaceutical companies’ capitalist drive for profit has transcended even the sacred breach of medicine to begin to allow people to choose their own drugs.

The newfangled experiment in medications recently extended to the GLP-1’s with all the attendant risks of self-diagnosis and self-guided treatment.

From the solo practitioner physician, I can see that the road to this point does not seem to be intentional. Shortages of the GLP-1’s initially due to underestimating the wild success of these medications led the government to allow for pharmacies to compound the drug, essentially bypassing the patent, so pharmacies could mix their own version and sell it at a discounted price.

Once that door opened, there does not seem to be a way to close it. The exact reasons for not closing the loophole are unclear. It could be the market forces, exceedingly high demand or the cultural conceit to overvalue thinness at all costs.

There still is the brand version of GLP-1’s that health insurance will cover, but people who want to try the drugs for any reason can find a cheaper version at a multitude of online shops. The barrier to prescription is minimal: a short call with a medical practitioner, who won’t question the reasons to try the drugs, followed by a prescription. As long as one pays, unlimited prescriptions at a dose of your choice awaits. There is no assessment of medical need or risks, just access to powerful drugs whose long-term effects are still very much unknown.

This next step in the GLP-1 experiment is surprising and has caught many people off guard. It’s hard for doctors to push back against a market that consumers have access to and have to accept that many people will be dosing their own GLP-1’s.

Gradually, people are turning to the drugs in the short-term as a weight loss tool rather than an ongoing medication. They are increasing and lowering their dose at will while experimenting with how their body responds to the drug. The potential outcomes and risks remain unknown.

What does this mean for people with eating disorders? How will this affect the presentation and treatment? How does a person in recovery cope with this reality? I’ll try to answer these questions in the next post.

Eating Disorder Recovery Remains Hard Even With New Advances

Despite numerous new avenues for eating disorder treatment, recovery remains challenging. It takes effort, perseverance and resilience to move through the process and get better.

I have written about the way new medications might be a useful tool, how concomitant medical diagnoses may inform treatment and how access to all forms of care can be beneficial. None of these changes affect the fundamental challenges in recovery.

Eating disorders reflect a profound change in eating behaviors from hunger and fullness cues to meal/snack structure to the underlying purpose of eating. Food is also a basic necessity for human survival, so much of the thoughts and behaviors around food are encoded deeply and unconsciously in our brain function. We delude ourselves into thinking we have conscious control of eating only to realize how much our bodies dictate how and when we eat.

Although new directions for treatment seem promising on the surface, none of them address the subconscious nature of how we eat. In order to change the embedded behaviors, we need to make consistent, conscious effort to change unconscious patterns.

For example, walking is largely an unconscious activity. One can change one’s gait in time but only with concerted effort to change every step until the new pattern becomes unconscious.

Much of eating disorder recovery is about similarly changing a deeply encoded pattern. The added issue is that the person needs to find motivation to do laborious work and forgo the very strong emotional benefits that come with behaviors.

Recovery demands the desire to find new ways to manage emotions, the effort to change eating patterns and the willingness to work on both of these endeavors day in day out until one becomes capable of managing emotions and food more comfortably.

No medication, medical diagnosis or program will replace the necessary steps to get better. Even though I continue to learn about all the ways someone with an eating disorder can recover, the fundamental path of recovery remains unchanged. People can get better and need to commit to the longterm process and know that they can be well on the other side.

What is the Place of Newer Treatments in Eating Disorder Recovery?

Eating disorder recovery is hard work. It’s the monotony of fighting to eat a meal plan and avoid disordered behaviors. It’s the struggle to ignore and fight disordered thoughts. It’s the pressure to create completely new patterns of eating. And it’s the challenge to find new ways to tolerate life without using the eating disorder.

The hardest part is that recovery just takes time. What feels most difficult changes over months and even years. The progress isn’t linear. There are ups and downs, and the down times make it challenging to remain steadfast and hopeful. Recovery takes patience, diligence and perseverance.

While one day I hope there are clear medical diagnoses and treatments that make recovery easier, those options don’t exist right now. Eating disorders remain under the purview of psychiatry as mental illnesses with some initial indications of medical diseases that may contribute to the disorder. For now, the treatment approaches—as ineffective, and sometimes harmful, as they can be—available are still the gold standard.

There is a current cultural focus on treating mental health while promising prescriptive cures either via medications or targeted therapies. Valuing our psychological stability is a welcome change, but the simplification of healing into a stepwise or time-limited process is very misleading, especially in the realm of eating disorder treatment.

Despite all the newer tools to help people get better, I don’t find recovery to be much different for my patients. The newer forms of treatment increase the likelihood of getting better and seem to mitigate some of the most painful parts of recovery, yet the longterm challenge throughout the process remains.

Consistently looking into and utilizing new ways to help recovery is important for the eating disorder field. Clinical teams need to work together to harness the newest means to help people get well. At the same time, we can’t promise a faster, easier recovery. The path is still long and arduous. It demands people in recovery find a way to trust others and a determination to push through difficult periods.

I don’t mean to make the process of recovery seem hopeless by any means. Instead, I want people to know clearly what it looks like to get better and to prepare for the steps ahead of them while taking advantage of all different kinds of support they need to get well. That path is lined with more ways to get better than ever. Hard work will help people with eating disorders get to a place of being well.

How the Eating Disorder Field can Adapt to the Changing Landscape

The eating disorder treatment field still lives in an old medical system which believes that information spreads primarily through clinicians, books and sanctioned websites. Acting as if these sources are the primary way patients learn about their illness is absurd and only does them a disservice.

We may want to live in an antiquated world with limited access to verified, absolute knowledge, but believing this lie forces patients to look elsewhere for guidance and to trust in the eating disorder field less and less.

The only people who still seem to believe the lumbering eating disorder system are parents who cling to an old way of following guidelines that no longer exists.

People with eating disorders are regularly frustrated and shamed by a system of poorly run treatment programs, unsubstantiated recovery guidelines,

rigid ideas about eating disorders and a willingness to blame the patient when things go wrong.

In addition, the reality of private equity companies running so many of the programs means that for profit entities guide much of the treatment available.

Reasonably, patients look elsewhere for guidance. TikTok is flooded with people with eating disorders sharing ideas about how to get better and about associated medical illnesses the field ignores. Reddit allows patients to discuss all of the knowledge they have amassed to give hope and direction for recovery. Patients use this information to find clinicians willing to help them be stable enough to opt out of a field willing to keep them stuck rather than find creative ways to help them get better.

Sure, clinicians can lament the changes in information dissemination along with technological innovation and change, but to what end? The changes are here, and people with eating disorders need clinicians willing to adapt to our changing world and not pretend we live in an old media universe. What is to be done?

First, acknowledge that social media provides a useful resource for all of us to learn more about our these illnesses. It’s not like eating disorder treatment is wildly successful or else people would accept the help that is offered. Respecting all different experiences can help us find more success in recovery.

Accept that creative approaches to treatment are needed. We need to consider and address medical issues that may be part of or even the cause of an eating disorder. The myth of an eating disorder as chronic stems from our ignorance rather than the idea of an untreatable illness.

Take into account the various financial incentives of bad actors in a field in which so little understood. The combination of capitalism and health care means that rich people take advantage of confusing and ineffective medical care by creating systems that make money off of treatment. The success of the treatment is often at odds with profit. Clinicians need to be mindful of their recommendations to any patent by staying informed.

Educate oneself about new medications and be open to their utility in eating disorder recovery.

Let’s work together to stay on top of an ever-changing system. These changes are neither positive or negative. They are the reality. Acceptance allows for any clinician to use valuable knowledge to improve care and outcomes.

How Someone with an Eating Disorder Can Feel Seen

So many people with eating disorders don’t feel seen and heard in their lives. Eating disorder symptoms provide relief by numbing, comforting and validating parts of themselves. The end result is that the eating disorder can assuage the emotional pain that results from feeling so invisible.

Although this experience is not universal for people with eating disorders, many people feel terribly alone.

I have written many times how the eating disorder can be a salve against this emotional pain and can be a means to feel companionship and reliability as well.

The path to recovery needs to include meal plans, external factors that matter to the person and a team of clinicians who the person trust and who cares for them. But eating disorder recovery needs something more fundamentally human than that too.

People with eating disorders struggle so much with the balance between a professional and personal relationship in therapy. For people who have felt so unloved, they have a hard time balancing what they actually need with the circumscribed, limited therapy relationship. As real as the connection is, it’s hard not to feel even more heartbreak and loneliness as a reaction to the boundaries imposed by the therapy relationship.

Yet the connection and care of the therapy relationship are critical to any true recovery. To do such incredibly hard work, the person needs to know that they matter to someone.

Granted, it’s easy for the therapist to envision the therapy relationship as a springboard to find that kind of love in a relationship without limitations. That’s easier for the therapist to lean on and potentially more satisfying for the patient too.

But that’s just an easy out. The therapy relationship still is meaningful, very real and ultimately the catalyst that leads the way to get better. The limitations and emotional pain that ensue also need to be addressed since this experience in therapy highlights much of what led to the eating disorder in the first place.

The answer isn’t clear. Even if the boundaries exist, the relationship for someone who has never mattered before is a transformative experience and invaluable. Plus, this is an intensely personal relationship. There is no clear advice that makes it any easier. The goal is to find one’s way, value how much the relationship brings and find gratitude to have found a relationship that makes it possible to live in this new way, one where the eating disorder isn’t dominating everything in life. Moreover, hope for the future can pave the way forward.